Joan Young has been a teacher, systems analyst, and manager at several companies, including those in the pharmaceutical industry. However, it wasn’t until her dramatic recovery from ITP that she embarked on her most rewarding career: helping others improve their health. After an overwhelming response to a small ITP web site she created, she founded the Platelet Disorder Support Association (PDSA) in 1998. The organization now reaches thousands of people in more than 130 countries.
Since retiring from PDSA in 2008, Joan continues to educate and inspire others. She is an associate editor of the International Journal of User-Driven Healthcare. Her articles, “Caught in the Middle:The Divide Between Conventional and Alternative Medicine” and “Review: US Cancer Politics Illuminated” as well as invited commentary have been published in that journal. She has also written the lead chapter, “A Healing Journey with a Thousand Echoes,” for the medical textbook, User-Driven Healthcare and Narrative Medicine: Utilizing Collaborative Social Networks and Technologies.
In addition to writing, Joan has given a series of lectures entitled “Beyond Twinkies and Treadmills: 10 (5) easy and cheap tips to improve your health.” She has also been featured in the television series ‘The Incurables.”
Joan lives in Sedona, Arizona.